All MS-ers Dream and Pray for a Cure Why do I, and every other MS-er, dream and pray for a cure for Multiple Sclerosis? Well everyone’s individual story is unique, but we all have one thing in common…. our disease is always getting worse. It’s just a question of how fast or slow. My Progressive MS symptoms are getting worse pretty fast. So let me put it into a context for you as you consider playing, sponsoring or donating to “The Jake” for the exclusive benefit of the National MS Society, Connecticut Chapter. Much of this applies to just about everyone with MS. Hopefully, you will personalize these symptom descriptions and better understand and appreciate the need for a cure: 1. Your body does not function below the waist. Sure, it sort of “functions”, but without any conscious control on your part. In other words, you have to know where every bathroom is whether you’re traveling 30 miles or a quarter of a mile. 2. Intimacy with an amazing wife or husband requires meds and/or energy conservation planning. Not very spontaneous. 3. Leg spasticity in the middle of the night wakes you without warning and feels as though a muscle tear is imminent. 4. The same spasticity persists throughout the day making it feel as though you have two full leg splints on. 5. It is time to take a nap within 2 hours of getting out of bed in the morning. Fatigue is “crushing” to give it a single word description. 6. Every step, even with a cane, has a questionable outcome. Try taking a 40 step walk and consciously think about every place you put your feet. 7. Tie a rope or belt around your thighs and go up and down a flight of stairs. Please be careful if you try this. It’s not fun or easy. 8. Spin around 6 times with your eyes closed then walk forward 20 feet. 9. There’s more but I don’t want to bore you about memory lapses and vision problems. So do you think a cure should be vigorously sought?! Does this neurological disease sound worthy of your support? Approximately 2-million people in the world feel like me and have to live with these issues every day. Sure, it’s not cancer or a terminal illness, but it might as well be for many aspects of our respective lives. Please give serious consideration to what I’ve shared with you here and try to “Play The Jake” on September 25 or make a donation to the National MS Society through "The Jake". The National MS Society needs financial support so that a cure can be discovered. A cure is out there. MS-ers can only dream and pray that it occurs in our lifetime. Registration commitments to play, sponsor or donate close September 5 at PlayTheJake . The tournament committee will bill you through your email address for however you choose to participate. Thank you for your consideration, Greg Jacobson
Posted on: Tue, 20 Aug 2013 17:47:10 +0000
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