Autumn Rayne (daughter of Jay and Lauri Mchenry) is a 15 year old girl with an incurable kidney disease called FSGS.She is in an out of the hospital very frequently and needs regular infusions from Upstate hospital for which they drive and hr each way. She has a specific diet. Below are some facts about the Disease. FSGS Facts More than 5400 patients are diagnosed with FSGS every year, however, this is considered an underestimate because: a limited number of biopsies are performed the number of FSGS cases are rising more than any other cause of Nephrotic Syndrome.1 NephCure estimates that there are currently 19,306 people living with ESRD due to FSGS2 , in part because it is the most common cause of steroid resistant Nephrotic Syndrome in children,3 and it is the second leading cause of kidney failure in children.4 NephCure estimates that people of African ancestry are at a five times higher diagnosis rate of FSGS.5 About half of FSGS patients who do not respond to steroids go into ESRD each year, requiring dialysis or transplantation.6 Approximately 1,000 FSGS patients a year receive kidney transplants7 however, within hours to weeks after a kidney transplant, FSGS returns in approximately 30-40% of patients.8 Currently Autumn is on her 4th admission in just over 8 weeks. This is hard on her and her family and friends. Her mom has been by her side every step of this journey. But a support system just isnt enough. We are planning a benefit to cover some of the many expenses that have and will occur during her fight. Oct 4th at Domincks Sport bar on co rt 51a in Scriba we will have a pulled pork dinner along with live bands and Raffles. At this time we are in need of much help if your able. Please Consider joing Autumns Army we chose this name due to her love for Camo and green is the color for kidney disease awareness. If you can help please contact Amy at 679-3022 Admin if this is not allowed please remove with my apologies.
Posted on: Sun, 24 Aug 2014 00:06:58 +0000