For everyone waiting anxiously for Lijahs scan results; oncology called they would like us to come in Tuesday to receive the results personally. Please pray for peace as we impatiently wait for the results. I know they have the information now, and I want it now, but they want a face to face.. I hate this. Also Lijahs numbers are obviously dipping as hes not feeling so hot, each day he feels a little crummier, please pray he bounces back. Its also hot as heck, & our 125yr old house is difficult to keep cool... prayers for Elijahs comfort are appreciated.. So upcoming: Were expecting a transfusion Monday, the doctors told us to plan for it, but ideally he wouldnt need it. He also on Monday has to now have x-rays, MRIs, chest scan, bone scan, bone marrow aspiration, labs, & every other test known to man. We will be there for 6+ hrs & he will be in anesthesia for 4+ and anticipating a transfusion to boot. Its going to be a brutal. Were looking to see how if at all the chemo has affected the tumor, or if God forbid the cancer has continued to grow or spread. As of last Tuesday Elijah had finished phase1(12wks aggressive chemo) of the 3 part plan (aggressive attack, local control, maintenance) he has no more chemo until after local control at which point ideally we go into maintenance. Right now for local control everything depends on the scans, we know were having a surgery (the 25th) although we dont know what that will entail. If the tumor is shrinking & easily accessible they will remove it with margins , do bone graft and he keeps his foot. If the scans are not great were looking at possible amputation. Up until last week, when we asked about radiation it was always very last resort, as radiation does rapidly kill Ewings but unfortunately, also often feeds it to come back worse; radiation was all but removed from the discussion. Suddenly its on the table and the doctors have suggested we prepare for the possibility. That would also be local control. Right now theres so much riding in these scans that my head cannot see straight except to panic. After the local control ideally comes maintenance which would be: we got it all, cant find any cancer anywhere, but have some more chemo for 30wks to make sure it stays gone. Then party. Obviously if we get particularly bad news from the scans we would not be maintaining anything but more again an aggressive attack, but it all depends on those dang scans. It feels like were free falling and Im about to pull the cord to find out if this is a parachute or just a backpack...
Posted on: Sat, 12 Jul 2014 17:22:45 +0000
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