Good news and bad news. Lets start with the bad and end with the good. Gideons come down with a yucky cough in the last two days. It makes me want to vomit. The cough that started this all in Spring of 2013 seemed not so bad. No fever, not horrendous sounding, but extremely damaging. It was so atypical it caused the pneumonia to be missed by the doctors. So Im trying desperately not to let my fears take over with the what-ifs and emotional nose-diving. That cough puts me right back in all those hospital rooms and sleepless nights holding my baby, not knowing how much longer hes going to live. *sigh* Now, good stuff. Gids been doing SO well the last few weeks before this cough. His oxygen saturation is almost always in the normal range, his resting heart rate is lower, and his activity levels have been AH-mazing. Even with the cough his oxygen saturation is within the normal range. We spent a week with family for Thanksgiving and the things he was doing Blew. My. Mind. He was going up and down stairs like a boss, tubing behind a four-wheeler, and taking very few breaks to catch his breath throughout the day. Not only so, but hes been hungry on a consistent basis, which hasnt happened since spring of 2013. Weve been super excited at his functioning level. Im trying hard to not let fear spiral out of control. One thing Ive gotten a little better at lately is releasing the illusion of control. Its one of those things I have a feeling Ill be learning over and over again for the rest of this life.
Posted on: Sun, 07 Dec 2014 04:07:54 +0000
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