Hi everyone. The time has come to ask for help! My dear friend, Kristy, has kindly set up the following page for me: https://givealittle.co.nz/cause/NikkiAndME The low down: * My current medical costs are around $400 a week. * My health is still shocking and I need to look to heading back to Australia for better testing and treatment * Even though the current medical regime isnt curing me, I cannot live without it. (Without it I am having seizures every day and constantly in hospital. With it, still housebound and very limited but I get a couple of hours a day of basic functioning, enough to usually eat and, when I can, shower and do a few things around the place) * I am unable to earn an income or have boarders in to reduce living costs as I am just too sick (even just daily interaction and conversation wipes me out and brings on grand mal equivalent seizures). My family helps me out significantly but it is a huge ask, year after year. This is my 16th year of illness, 14th year totally debiliated and unable to work or study (I was studying full time before the full blown M.E so had no money behind me even). If I receive more than I need or have a massive turnaround in circumstances, my desire is to set up a trust fund to help others with M.E afford treatment. Long term, I will find a way of doing this, regardless (bu in the meantime, I need to get myself well, or at least functional, and need help to do so!) The treatment I am on (gcMAF) can provide a 100% cure when provided early enough (I have seen this first hand in two cases in our tiny town alone, both of whom went on the medicine after seeing my progress. Unfortunately, I am in stage 4 of M.E which also has the neurological, mitochondrial and cardiac elements meaning it is much harder to treat and reverse). When I can, I still sing little ditties off the cuff and upload to youtube to provide hope and support for my other friends going through M.E (and other illnesses) and just to try to do something positive in the tiny windows of opportunity. None of the songs are rehearsed or have backing tracks etc, Im just not well enough. I get a few minutes to do one time through and thats it! In time, I hope to get well enough to make singing a career, not only because of my love for it but because of what I can offer to others through my voice. Please help me to achieve that dream ... without my health, it will never happen My youtube channel will also, at times, have clips of the daily reality of M.E. The irony of this is I have to be well enough to make the videos ... something I really struggle with and then crash after doing so ... but I try. Its scary to put myself out there like this but things need to change! Thanks so much for your support. If you dont wish to donate, please still like my FB page to keep up to date with the latest and please share! If you do wish to donate ... THANK YOU! Even $1 or $2 all adds up so please dont think I cant donate enough to make a difference. Every dollar is welcomed! For those who arent subscribed to my youtube channel and wish to, the link is: youtube/channel/UCXD0X28juyPqdAvpnBwoT-w My old one is youtube/user/theonlynikkijo but I will be using the first one, NikkiJo Music and M.E predominantly from now on And of course please share this page and post. For those reading this from a share who wish to follow my journey, please like my FB page here: https://facebook/pages/Nikkijo-Music-and-ME/348022178624629 Thank you so much!!!!!
Posted on: Tue, 25 Feb 2014 02:42:48 +0000
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