June: Just a quick update before this mommy goes to bed, it has been a long day. Grant and I were at the hospital early this morning to have labs drawn as the condition of us going home last Friday was that we showed up at 8 am on Monday for labs so to CHOA in rush hour we went. We were greeted by a church friend who drew Grants labs which was a sweet surprise to our morning. We finished in time for me to switch off Grant so that I could attend the second half of our girls open house at school. It was a blessing just to feel the love from our school community. I believe it was so reassuring to the girls to hear their teachers, present and past, hug them and tell them they are praying for all of us and that they are here for all of us this year. It will be good for the school routine to begin again and the girls were so happy to see their friends again. One of our biggest aches is the hearts of all of our other children through this process and it just warmed my heart to be able to be there today amongst our prayer warriors at school and hear once again that they will continually be reminding our girls that God is good, He weeps with us in our sorrows, but He wastes nothing and is holding us tightly throughout this. On the Grant home front, we received word late this afternoon that although several counts were still not so great, the transplant teams numbers they needed were high enough that we will be going for stem cell harvest tomorrow! This will mean Grant will be hooked up to a special machine for several, meaning up to six hours, to harvest the cells they need. We need prayers that we will be able to entertain him for all these hours as he will have to remain in the bed, this machine cannot follow him while he runs down a hall! We also pray that they will be able to harvest the desired amount tomorrow. Grant remains in great spirits and we enjoyed a family outing to Brusters Ice Cream tonight for a family treat. You would never know the little guy is fighting this huge battle, except maybe for his still crazy refusing to sleep attitude at night. We are going to talk to our doctors about increasing his melatonin dosage as the syringe here doesnt seem nearly what he was receiving at the hospital last week. Thank you for your constant prayers through each of these steps. One step at a time, one prayer at a time!
Posted on: Tue, 05 Aug 2014 02:43:04 +0000
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