Just to bring awareness, a young teen just posted this on a fb page I belong to... Crohns and Ulcerative Colitis page Educate your children about things like this, these children feel so alone and abnormal with their diseases, especially as its mostly all to do with being unable to hold your bowels and having diarrhea a lot of the time. Which means theyre scared of social occasions and having friends, leading to loneliness and depression. Reading about his life brought tears to my eyes... God Bless all people who suffer daily from invisible diseases :( Matts words.... Ive never really vented about colitis. So sorry for asking people to read in advance. Ive been diagnosed with this disease since I was 3. I know nothing but this disease . I cant stand this anymore. Prednisone stumped my growth, I had BACK hair by 8. People used to comment on it and I used to just change the subject. I hate looking at my old pictures of me as a smaller kid. Cheeks puffed up and smile to add. As time went on that smile fades. I knew what was happening. I was sick and I knew it. My legs would cramp up so bad I had to crawl down the stairs in the morning.I had to use muscle relaxants at the ER to unclench them. When I was 6 or 7 I had erythema nodosum on both shins. By 8 I was on remicade. After that was weekly shots. At age 10 I couldnt deny I was different, most everyone has a colon but I didnt. My parents had made that difficult decision for me. Had an ileostomy for 8 months. How can can anyone smile after losing so much. I ended up with a Jpouch and I shitted myself EVERY night for 3 years. Nothing could stop it. I had to wear diapers so I wouldnt stain anything. It doesnt help that its all liquid coming out. I camped with it and that was terrible. I had accidents occasionally usually pooped 8-9 times a day.then it started tapering off little by little by 14ish. I spent almost 7 months without leaking at night. Then I relapsed this past few months. Yep thats right Im 16 and I dont know what normal teenagers do. I hate it. I hated the surgery. I hate the aftermath. I hate the outcome. I carry a fairly regular scowl on my face. I spend more time woodworking than with my closest friends. I havent told anybody any depth to what has happened to me. They ask why so serious, I reply back just being realistic. Thththth thats all folks.
Posted on: Sat, 16 Aug 2014 04:52:08 +0000
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