Meet The Children Who Rely On Marijuana To Survive Since he was just a few months old, 10-year-old Zaki Jackson has suffered from a rare form of epilepsy that, at its worst, causes him to have thousands of seizures a day. The seizures, which his mother describes as a full body electrocution, render him unable to talk or walk, and sometimes cause him to stop breathing. Over the past decade, his family has tried to combat his syndrome with 17 different pharmaceutical medications, a specialized diet and alternative forms of therapy like acupuncture. The various medications have caused him to gain weight, become incoherent, experience extreme cramping and lose his ability to sleep, but theyve never stopped the seizures. His brain could never function well, Dr. Margaret Gedde, one of Zakis doctors, told The Huffington Post. He could never be present. Gedde recommended Zaki start taking a strain of medical marijuana thats high in cannabidiol, a non-psychoactive ingredient known for treating seizures, and low in THC, which causes pot smokers to feel high. Since Zaki began the treatment more than a year ago, he has been seizure-free. He had 10 years of nonstop seizures and sedating medication, Gedde said. Hes now able to start developing as a normal child. Hes a delightful, charming kid. Before that he couldnt even be in contact with people. It was a dramatic, complete change. Zaki is one of more than 180 Colorado children currently being treated with a special strain of medical cannabis thats helping to combat their extreme seizures and other debilitating conditions. The strain, known as Charlottes Web, was developed by a group of brothers who run the Realm of Caring Foundation in Colorado Springs. It is named for 7-year-old Charlotte Figi, whose successful treatment was featured in Dr. Sanjay Guptas CNN documentary Weed last year. Charlottes Web and similar strains are administered in liquid or capsule form and, Gedde says, produce little to no side effects. Because of the low THC count, users dont experience a traditional marijuana high. Its amazing; its completely remarkable, Gedde said. It does stop seizures. It doesnt hurt them. Marijuana has a long history of effectively treating seizures. In 1843, British Army doctor William OShaughnessy published an article documenting his use of cannabis oil to stop an infants near-constant convulsions. But because marijuana remains illegal on a federal level, modern research scarcely focuses on the plants medical benefits. The use of cannabis treatment in cases like Zakis is groundbreaking, in that we havent had the chance to document this, Gedde explained. Were trying to pull the experiences of these parents into publishable work. Animal and laboratory studies help support and explain what we see. Gedde, who holds a doctorate in biophysical chemistry from Stanford University, spent years in the pharmaceutical industry before switching to a focus on alternative medicine. She recently decided to dedicate her Colorado-based clinic solely to medical cannabis. I realized the substances being chosen for development in the pharmaceutical industries werent necessarily the ones that patients need, she said. Marijuana can do all these things, but its not toxic or harmful. Since the story of Charlottes recovery made national news, hundreds of families in similar situations have relocated to Colorado from states where medical marijuana is illegal in the hopes that their sick children might experience the same results. More than 100 families are currently on a waiting list for Charlottes Web. Hailey McGuire, the 7-year-old niece of Colorado-based photographer Nichole Montanez, is one of the children on that waiting list. Hailey suffers from Dravet Syndrome, the same severe form of epilepsy that causes Charlottes seizures. Weve said goodbye to her a number of times, Montanez said. When she was four, she was placed into a medically induced coma. Montanez began volunteering at support groups for families in similar situations. Last August, she launched a photography project, Face of Cannabis, featuring portraits of Zaki, Charlotte and other children who use marijuana to treat their debilitating symptoms. I identified with each child as if they were my own, she said. They have feelings, they laugh. I want that to be what people see when they look at the project -- not the disease or the brokenness, just the child. Realm of Caring isnt the only clinic to successfully treat sick children with medical marijuana. Californias Harborside Health Center, which the Obama administration has been threatening to shut down for years on the grounds that its become too large of an operation, provides low-THC cannabis tinctures to a number of young patients. Gedde pointed to another program in Michigan and added that a number of small-scale providers are beginning to treat children in states where the plant is legal for medicinal use. And in states where medical cannabis remains illegal, individuals are fighting for sick children to have safe access to the plant. A coalition of Mormon mothers in Utah recently formed an advocacy group with the support of their conservative state representative. State Rep. Allen Peake, a Republican lawmaker in Georgia, unveiled a bill earlier this month that would legalize cannabis oil, a move inspired by Peakes visit with a constituents daughter who suffers from hundreds of seizures a day. Florida legislators are currently considering a similar measure. Montanez said she herself was opposed to legalizing medical marijuana until she saw the effect it could have on sick children. She hopes others with similar beliefs will see her photographs. My ultimate goal is that people might be open to the possibility that theres a better way -- that cannabis is a medicine, she said. Kids across the country and internationally should have access to this medicine. 420magazine/forums/international-cannabis-news/210385-meet-children-who-rely-marijuana-survive.html#post1978164
Posted on: Sat, 01 Feb 2014 09:31:28 +0000
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