Must read for Cfs Me suffers. After a couple of months of starting to get out and about daily. I am infuriated to be back to being house bound and not having energy to walk or talk much at all. Own fault Ive over done it after meeting with friends one eve, a massive wonderful step, fantastic fun so much that I ignored my symptoms and stayed too long, next day had energy to go out again for drive and breaky at 1.30pm! Early for me. Then wham you know the feeling a demolition ball comes and smacks you off your feet. 9 days later Energy still hardly there. Therapist explained that our batteries in cells ( mitochondria) unlike a mobile phone have no bars to tell us how much battery we have left . It may feel to us we have 5 bars when really we are about to shut down as on last bit of last bar. When we carry on we damage our cells this can go on for 72 hours. The cells then shut down to repair hence our crash . We have to plug our mobile phones in to recharge and like some mobile phones they cannot be used for a while until they are ready it is the same with us. This can take days weeks or months depending on how far we have over done it. So stop and recharge more often and dont believe your head hen it tells you you have more energy than you have, or ppl who convince you to keep going, your battery indicator is knackered!!!! Sensible pacing does work Im finding the hard way. Xxxxxx
Posted on: Mon, 27 Oct 2014 18:23:31 +0000
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