People With Alzheimer’s May Be Stumped by the Simplest ThingsPeople with Alzheimers may have great difficulty figuring out the simplest activities. The following story illustrates that poignantly. One day I decided it was time to see how my Romanian life partner, Ed, was adjusting to his first day on the new unit hed been moved to at the nursing home. Theyd moved him because he was requiring more personal care, which could be given in the new area. When I reached Eds new room, I expected to find him disoriented, agitated and upset. But he was calmly sitting at his desk. Wearing his khaki Dockers and a crisp red and white pin-striped shirt, he was reading, or at least trying to read, what looked like a philosophy book, probably in German. Most of his philosophy books were in German. Suddenly a stocky little man appeared in the doorway. His black trousers were hanging a couple of inches below his waist and his plaid burgundy and grey flannel shirt was un-tucked on the right side. I was surprised when Ed, a life-long loner, raised his hand and shouted, Come in, come in. Ed looked at me and said, Marie, this is my dear friend, John. Weve been best friends for years. John shuffled in, advancing in short jerky movements, his house-slippered feet barely lifting from the floor. Slightly balding, his remaining hair was jet black, his eyes dark brown, and he had a round jovial face that reminded me of my Irish Grampa Graves. Yes, weve been best friends forever, John said, waving at us. Ed patted the empty space next to him on the other side of the sofa and John sat down. Then - and you might imagine my shock - they started holding hands and taking turns telling me how many years theyd been best friends. They reminded me of two little girls sitting on a bench, dangling their legs while waiting for the school bus. I was delighted - though dazed - that Ed had made a friend, and so quickly at that. Hi, John, I said, wanting to be gracious to Eds new friend. How long have you lived here at the Alois Center? He snapped to attention. All my life, he answered proudly. I shouldnt have been surprised, but for some reason I hadnt expected this man to be as confused as Ed. As I left the Center a little while later, Ed accompanied me to the front door. When we reached the door we went through our usual leave-taking, saying good-bye repeatedly and blowing kisses to each other. When are you coming back? he asked. Tomorrow, I answered. He asked me that every time. And I always said tomorrow. I wanted to please him and I knew he wouldnt know the difference anyway. But instead of responding with his usual Marvelous! he looked bewildered. What should I do now? he asked plaintively. Do whatever you want, I answered as I waited for the doors 30-second delay to pass. I dont know what to want, he said. I was blindsided by his remark. He seemed so lost. Well, why dont you just sit in this nice chair here for a while? He sat down obediently. How long should I sit here, Marie? Sit however long you want, I said, turning from the door and walking back toward him. Marie, I dont know how long, he said, looking forlorn. Okay, I said. You sit here thirty minutes. Thank you, Marie. I will sit here for thirty minutes. What should I do then? He looked at me as though I had the answer to all of lifes critical questions, including that one. My heart sank as I realized he now needed specific instructions for what to do every moment. Sit here in this chair for a half hour, I said, kneeling in front of him. Then go to your room. When you get there, get ready for bed. I will visit you again tomorrow. As though he could remember all these instructions. Oh, Marie, he said, Thank you for your guidance. It really means so much to me. And with that we blew each other kisses again and I left. I was completely overwhelmed by his further descent into dementia. This formerly brilliant lawyer and professor could no longer even decide how long to sit on a chair. Marie Marley is the award-winning author of the uplifting book, Come Back Early Today: A Memoir of Love, Alzheimers and Joy. Her website (ComeBackEarlyToday) contains a wealth of information for Alzheimers caregivers.By Marie Marley People with Alzheimers may have great difficulty figuring out the simplest activities. The following story illustrates that poignantly. One day I decided it was time to see how my Romanian life partner, Ed, was adjusting to his first day on the new unit hed been moved to at the nursing home. Theyd moved him because he was requiring more personal care, which could be given in the new area. When I reached Eds new room, I expected to find him disoriented, agitated and upset. But he was calmly sitting at his desk. Wearing his khaki Dockers and a crisp red and white pin-striped shirt, he was reading, or at least trying to read, what looked like a philosophy book, probably in German. Most of his philosophy books were in German. Suddenly a stocky little man appeared in the doorway. His black trousers were hanging a couple of inches below his waist and his plaid burgundy and grey flannel shirt was un-tucked on the right side. I was surprised when Ed, a life-long loner, raised his hand and shouted, Come in, come in. Ed looked at me and said, Marie, this is my dear friend, John. Weve been best friends for years. John shuffled in, advancing in short jerky movements, his house-slippered feet barely lifting from the floor. Slightly balding, his remaining hair was jet black, his eyes dark brown, and he had a round jovial face that reminded me of my Irish Grampa Graves. Yes, weve been best friends forever, John said, waving at us. Ed patted the empty space next to him on the other side of the sofa and John sat down. Then - and you might imagine my shock - they started holding hands and taking turns telling me how many years theyd been best friends. They reminded me of two little girls sitting on a bench, dangling their legs while waiting for the school bus. I was delighted - though dazed - that Ed had made a friend, and so quickly at that. Hi, John, I said, wanting to be gracious to Eds new friend. How long have you lived here at the Alois Center? He snapped to attention. All my life, he answered proudly. I shouldnt have been surprised, but for some reason I hadnt expected this man to be as confused as Ed. As I left the Center a little while later, Ed accompanied me to the front door. When we reached the door we went through our usual leave-taking, saying good-bye repeatedly and blowing kisses to each other. When are you coming back? he asked. Tomorrow, I answered. He asked me that every time. And I always said tomorrow. I wanted to please him and I knew he wouldnt know the difference anyway. But instead of responding with his usual Marvelous! he looked bewildered. What should I do now? he asked plaintively. Do whatever you want, I answered as I waited for the doors 30-second delay to pass. I dont know what to want, he said. I was blindsided by his remark. He seemed so lost. Well, why dont you just sit in this nice chair here for a while? He sat down obediently. How long should I sit here, Marie? Sit however long you want, I said, turning from the door and walking back toward him. Marie, I dont know how long, he said, looking forlorn. Okay, I said. You sit here thirty minutes. Thank you, Marie. I will sit here for thirty minutes. What should I do then? He looked at me as though I had the answer to all of lifes critical questions, including that one. My heart sank as I realized he now needed specific instructions for what to do every moment. Sit here in this chair for a half hour, I said, kneeling in front of him. Then go to your room. When you get there, get ready for bed. I will visit you again tomorrow. As though he could remember all these instructions. Oh, Marie, he said, Thank you for your guidance. It really means so much to me. And with that we blew each other kisses again and I left. I was completely overwhelmed by his further descent into dementia. This formerly brilliant lawyer and professor could no longer even decide how long to sit on a chair. Marie Marley is the award-winning author of the uplifting book, Come Back Early Today: A Memoir of Love, Alzheimers and Joy. Her website (ComeBackEarlyToday) contains a wealth of information for Alzheimers caregivers. ift.tt/1gB4pon
Posted on: Thu, 23 Oct 2014 12:04:30 +0000
Trending Topics
Recently Viewed Topics
© 2015