Update on Emma Kate: I just heard from Michigan on her gene test results and the type of gene she has with Lebers Congenital Amaurosis praise God there is a treatment option for it!! All the trials here in the US wont take her until she is six but there is a trial going on in England that will take her at three!! The doctor there is the doctor that has came up with all gene replacement for what she has and has actually came out with a new one that is better than the other one but it is only done there!! He works very close with Kellogg Eye Center in Michigan which is where we took Emma Kate! They are going to talk with him to see if she can get into there trial in England and have her check ups in Michigan with him being a part of there team! This new virus will not be available here until October 2015 and they do not wont her to wait that long so she doesnt lose anymore of her vision!! This is a lot to take in but I just thank God and give all the glory to him that she has a type they have a treatment for!! Now I pray we can get into this new trial even if we have to go to England! I will do anything to save my little girls vision so she will not go blind!! Thank you all for the prayers and continued prayers they have worked now I just pray we get into this new trial!!
Posted on: Thu, 07 Aug 2014 17:29:02 +0000
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