What. A. Day. Today when I arrived to see Akira I was met by the senior nurse telling me Akira had had no feeds because she had pulled her NG (feeding) tube out and no antibiotics because she had pulled her canula out (the valve that allows intravenous medicines to be given),she was back on oxygen as her levels were dipping a lot, she had been sick overnight and she was on Nil by mouth as her face has swollen so much ENT wanted to give her a scan then take her back to theatre and open her completely up again. She is so swollen her chin is developing a pressure sore from sitting on her trache tube and.the stitches in her wound is under a tremendous amount of pressure and the swelling is rock hard. While waiting for her actual consultant we had to prepare for theatre which means blood tests and IV antibiotics which means a cannula. I had to pin her to the bed while a nurse held her arm tightly and a Dr tried to get a vein. Akiras veins are not playing ball so there was a lot of screaming, shaking in pain, blood and...no suitable veins for a test and cannula. We went through this 3 times in prep for theatre on monday. When her consultant arrived he wasnt as concerned as everyone else and said he didnt require a scan or theatre. Her surgery is a horrible one to recover from and involves a huge amount of swelling and high risk of infection. Also her wound drain was blocked.Consultant ordered drain to be removed, for an anaethetist to put in a cannula as they are most experienced in the hospital so technically should be able to do it easier, to continue the IV antibiotics and gave everyone strict orders that nobody is to even think of taking Akira to theatre over the weekend. Nobody is to touch her except him. So if anything goes wrong over weekend he is to be notified and he will sort it. Even though he isn t on call this weekend. After that we went through another failed attempt at putting a cannula in. This one went in then fell out so my trousers and the floor are now decorated in Akiras blood. Second attempt worked. Next she needed a blood test and they didnt want to draw blood off cannula for fear of breaking it so another blood test. This time a heel prick test which isnt as sore but takes ages. By this point Akira is hysterical. The pain manager decided to let her have another day of continuous IV morphine even though they usually want them off it in 48 hours. She is just in too much pain. She didnt sleep the whole day which meant Gob and I couldnt leave for food. I have left just now to get Kiara to bed and he is still trying to get her to sleep. Every time a nurse goes near her she tries to climb out the cot and cries and starts shaking. She was seen by physio today and she is going to need considerable physio for a very long time to get her severed muscle strong enough to support her head again. So just a normal day with a sick child in Yorkhill. Hopefully tomorrow Akira doesnt have to be in so much pain. The happy things of today were getting a lovely flower delivery from Akiras Nan Rita Mcnab and getting to hold Akira for the first time since tues morning (not the best photo as it was dark on the ward by then). Yesterday we had a lovely surprise too when Akira and Kiara got lovely balloons from Akiras old Yorkhill room mate who was on the ward as well. Thanks Cher Rodger. As Akiras consultant says it cant all be plain sailing and Akira has done so well so far. Keep fighting baby girl, just dont fight with those cannulas. Xxx
Posted on: Fri, 15 Aug 2014 20:53:06 +0000
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