Yesterday was bad. Financial stress...issues with our home...hard decisions that need to be made..heck, everyday life...it wears on me and yesterday was hard. I kept telling Charlie, I just want to run away. And he kept responding,Honey, you know that there is no running away for us. Its just not possible. So, instead of running, I curled up on the bed and silently fell apart. As I was laying there...praying and crying. .I thought, I just need to get out of here...just for a minute.. I need to see the Hurst family. At that moment, I heard Charlie laughing from the living room. I bitterly yelled out,Why are you laughing? Because I just got the cutest text from Casey M. Hurst. She said that she misses us and wants us to come spend the night with them. We quickly called her, packed up and headed over there. Because sometimes you just need to run away. Although Casey and Jason know that things have been hard for us, they had no idea that yesterday was very nearly my breaking point. The invitation via text was completely random. Or Was It? What if, in that moment of crying and praying, God knew that I needed to escape? What if HE decided to whisper in the ear of a friend because HE knew in that moment, I was feeling hopeless? I cannot even pretend to know or understand the inner workings of our God. But, I do know this: We. Are. Not. Alone. Last night, I spent the night with a family that would give...that do give.. everything that they have for others. In fact, we met for the first time when they gave up their entire day to capture a special day for Chloe. We immediately felt a bond with them. The Hursts are on their very own journey with their two awesome sons, Dylan and Tucker. Their journey is similar to ours in that we both have medically fragile miracles. It is similar because we know that with our miracles, tomorrow is not promised. We have both seen so many other children like ours leave our world. We both know the feeling of feeling thankful, guilty, and terrified ...all at the same time. Thankful that our babies are growing up...guilty that we have our kids while others no longer do..terrified because we know that everything can change in a moment. But, as similar as our walk is, it is also very different. Chloe and Tucker do not share the same illness. While Chloes illness is labeled life threatening , Tuckers is labeled terminal. While Chloe grows and learns, Tucker loses things...like words...and movements. To put it frankly, Tuckers body is slowly... but surely..betraying him. At thirteen years of age, he has already made it further than most children like him that have MPS II. Everyday with him is precious and borrowed. Knowing the tears that are falling at just typing that... feeling the tightening of my chest at just thinking of that...Well, I just cant imagine how hard it must be for this precious family. I mean, I can, because of Chloe...but, really, I cant, because of Chloe. Because, for now, Chloe is well. Last night, I walked into the Hurst house. I went straight to Tucker who was sitting on the couch laughing at Sponge Bob. I sat down beside him, touseled his hair and whispered Hey ya Tuck. He looked over at me, saidHey and puckered up for a kiss. Thats how he is. He just loves to give kisses. I sat with him for a moment...letting the love from this little guy heal my broken spirit. His love...simple and pure...is ever present. And, it heals, guys! We spent the night with the Hurst Clan..laughing and talking well into the night. We talked about how crazy wonderful it is that we met each other. We briefly talked about hard, scary things. But mostly, we laughed. Because we all knew that our time for crying had to stop. Because we all knew that good times with friends are precious and rare. Because we all knew that sometimes you just need to run away..just for a few moments. I left there today....as I always do when we visit....with a new perspective. Things are still hard. But, we are so blessed because God has placed in our lives His strongest...His kindest...His most miraculous. He sends them into our lives when we need to be reminded that kisses from a little boy can heal anything broken. We love you guys...SO MUCH!
Posted on: Fri, 16 May 2014 00:55:12 +0000
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