dear friends i need your help it has been 3 years since im trying to create a lebanese association for ALS without succeeding because families of ALS patients were so busy in care to have time for this task. Thats why i decided to seek help between my friends on facebook, for many reasons: ALS is not so rare in lebanon maybe 1/100 000, but unknown and undeclared probably because of short survival of patients Ive seen patients dying from misleading information, misunderstanding or inappropriate care Ive seen most patients lost in their disease and most families lost in management of their patient many experiences as well as materials can be exchanged between families... And many to say... Any help is welcome 1st step: need people for administrative papers with the government 2d step: need people for creating an interactive website with forum in 3 languages: arabic, english and french 3d step: need professionals like: lawyers for rights social workers for seeking help doctors for information and advices physiotherapists, occupational therapists, speech therapists nurses and caregivers for nursing psychologists for patient and family support dieticians for nutrition reporters and journalists for spreading awareness mechanics for adapting cars and any help... please reply or inbox me
Posted on: Sat, 18 Oct 2014 10:18:53 +0000
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