ok therapy went ok today he babbled some but was really weak and kinda floppy kept falling a lot was trying to get him to be able to step up and down he just has a hard time getting that right foot up high enough and doesnt pay attention either...we seen a new neurologist today and he is great he knows about Dravet Syndrome and confirmed Louie has Dravet Syndrome and he also agrees with his dr and therapist on the CP diagnosis and is glad we are seeing the CP clinic and are already getting therapies...we are also going to be getting him a new stroller his therapist is calling the guy from the clinic to come and bring some so we can see what works and get him fitted...we go back to neurology in 3 months to see how the Topamax is doing...he also said he is confident the episode yesterday was seizure activity and to let them know if we see this happen again also what is a normal BP and resting pulse for a 20 month old? his pulse is 143 which is a little higher than his normal and his BP was 129/73 which was a bit higher than normal for him and he was calm today especially compared to how he normally is
Posted on: Wed, 23 Jul 2014 21:13:56 +0000
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