A beautiful story straight from a Mothers heart. Hana came to Amirs Gym for an 6 weeks Intensive Pediasuit Programme and was able to extend the programme for a while. We are honored that Hana was entrusted to our care. Special thanks to our Team of therapists, Elia Nadia Othman , Keshinisudha Rajaguru and Zu who were always creative in their ideas to get Hana up and about. Curious about Pediasuit? Heres a video that our collegues made in Jakarta, Its filmed at our gym youtu.be/8E-mQw8dcws . We look forward to being part of hanas healing journey and to be playing with her in the sunshine and the wind. God Bless you Mystique Maya. The Road Not Taken I dont remember Hanas first few years of life much. My mind has a tendency to suppress sad and painful memories. All I remember was a flurry of therapies, massages, hocus pocus and a hodgepodge of hospital stays and visits. I remember she used a feeding tube to drink her milk - her muscles around her mouth were to weak to suck on bottle teats. I remember that Hana was like a little rag doll, she had no control whatsoever in her muscles. I remember Hana having staring fits whenever she was too tired. She would stare without blinking for long seconds and I could see tears pouring out of her widened eyes, frozen in time, unable to cry out until the fit ends. And I still remember the doctor calling her floppy, and that she will never be able to walk... I remember it took Hana months (and even years) to have neck control, to roll over on her own, to sit up, to maintain her sitting position, to tolerate loud sounds, to be able to eat solid food, to crawl. To anybody else, all these would have taken months or even weeks to master, and so these milestones are not something to be celebrated. But to me, every progress that Hana has made is monumental. Every little noticeable positive achievement is a step forward to enabling Hana to be more independent. It was hard, at first, to see Hana cry, whine, wail, whimper, at therapies. It was hard for me to let her go to a therapy and not see any progress at all. It was hard bringing her to any and all sorts of therapies, to Perak, Kelantan, Johor, anywhere that may bring help to her. Not forgetting the emotional upheaval of coming to terms with Hanas condition and that this will be my way of life from now on. Yes, it was hard. But Hana has taught me so much. It is to persevere. To trudge onwards no matter what we may face. To be determined. To be patient. To have faith. To not give up. To believe in miracles. To know that this is all part of Allahs plan, that we are exactly where He plans us to be. Which brought us to Amirs Gym. Ive always wanted to bring Hana there ever since Ive heard of it 2-3 years ago. But I couldnt commit to the program then. I told myself that one day Hana will go there. And so today marks another milestone in Hanas life. After 53 days of hard, progressive work, Hana has graduated in her first ever intensive therapy using the Pediasuit. From not knowing how to stand properly, Hana is now able to stand for 5-10 minutes at a time. From having very little muscle mass in her legs, Hana is now a proud owner of muscular upper thighs. From having great difficulty in chewing her food, especially chicken pieces, Hana is now able to chew and swallow much faster. From having very little focus and miniscule social skills, Hana is now able to focus more and can even play together with her sisters. Her therapists dedication, positive energy and creativity are commendable. Thank you, Elia, Zu and Kesh for your tireless work on Hana. And I have found a dear friend in Amirs Mummy, Fezia Tyebally. She has been very positive and supportive of Hana, and I love her brand of wit, dry humor, frankness, practicality, compassion and sincerity. Fezia is truly a healer. Thank you, Fezia, for being you, and for your generosity and friendship. Yes, it has been a remarkable 9 years for us thus far. I know that with Hana, there are more journeys to come, more paths to explore, more roads to be taken. I thank Allah for all the Blessings and Opportunities He has bestowed on Hana and I. I pray that one day Hana will become an independent person, able to express her thoughts and feelings in whatever way she can, in this world or the next. Just like how I dreamt once. Hana running in an open golden field, sunshine lighting up her face, the wind in her hair. She was laughing, carefree and oh so happy! I love you Kakak Hana, for who you are, and for leading us on this extraordinary adventure.
Posted on: Sat, 20 Dec 2014 00:04:10 +0000
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