A questionnaire was offered to an MRKH support group of 250-300 women. Twenty-one women replied. I found it nearly impossible to summarize the data collected. It became even clearer to me that this is such an individual experience for the women involved. I was hoping for similarities. Common answers to questions in my life that this experience has raised for me. I did find similarities, but this report will differ greatly to the reports I have read by medical professionals. MRKH is more than a medical condition. Society and culture play a major role in how MRKH affects us. Even though there are variations in the answers I received, there is the common loneliness, pride and strength voiced by the women. Some answers are listed below the questions. This report will not be your typical survey report that wraps it all up. This is not a typical situation to report on. I felt the most honest way to express the replies was to share the direct answers. This is purely a collection of thoughts and experiences. This report should not be used for diagnostic information or medical advice. I didnt bother with a control group comparing our needs, reactions and situations to women who were born with vaginas. It has bothered me to read about my body and my life as compared to normal women. The only generalization I can make from the women who replied is that they represent a more positive, proactive group of women. First of all they know they have MRKH. They have the support of each other. These women also have access to information through the Internet. For many women; worldwide and class-wise, information is not available. Esther Morris Copyright October , 2000 MRKH.org [email protected] mrkhorg.homestead/files/home/SummarySurvey.htm
Posted on: Mon, 16 Jun 2014 09:41:26 +0000
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