A year ago today I had an MRI under anesthesia that went toxic in my system causing my lungs to go from functioning at 17% using bipap at night to 0% and unable to breathe on my own. We knew this was a risk, but had no idea itd be this severe. When I woke from surgery I remember gasping for air so loud begging them to raise my bipap settings. Finally they got the settings adequate and I stayed in the PICU for 3 days, and hospital a total of 5. Since it was a bipap it had no battery so id have to hold my breath when not by an outlet, luckily my amazing lung dr Bptani ordered my ventilator and got it to me in about two weeks. Since then it has been a non stop struggle to keep my settings appropriate and attempt to get off my vent. 100% of the time Im short of breathe, but my doctor and company are working VERY hard to help. The most progress I made was almost 10 minutes with no break but later lost all my progress and back to square one. Today I can go about 2-3 minutes. Im still trying everyday to go longer. Life is alot more complicated not only for me but for my family, and friends. Im not where I want to be progress wise, but I know in my heart with prayers Ill get off this thing. I do owe a big thanks to Amelia Moore for telling me about the trilogy and saving me from being trached. Its been a long hard year, but with the trilogy im still able to live my life as long, and as normal as possible. Since last years traumatic experience Ive really started perusing my bucket list, cherishing family and friends and continuing to try to use my illness for Gods will. The picture of mom and I is from the morning of surgery, one of the last pics taken before. The story behind the edited picture is lyrics from the song breathe just breathe the lyrics came to mind acouple days later, the pic taken when I realized this wasnt temporary. I captioned this pic on IG if all you do is breathe today, thats ok. Thanks for all the love and prayers. Life is not measured by the breaths we take; but by the moments that take our breath away. -Renee
Posted on: Wed, 09 Jul 2014 02:19:03 +0000
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