Folks, children are dying. Come on. We can do better than this. As humans we must do better than this. I’m confident that we will do better than this. Just how many more “Charlottes”, how many more “Zacais” , how many more children are out there that this plant could potentially provide relief for? This begs us to ask the question, “Are we willing to change our national view on medicinal cannabis in trade to save one thousand more lives?” How about just one more life? At the end of the day what are we talking about here? We’re just talking about a plant. This is a plant that grows anywhere from 3 to 8 feet tall, about every 7 to 10 weeks it will produce a flower (or a “bud” as you know it) but that’s it. It is just a plant. It even grows on 6 continents but it’s a plant that Charlotte Figgy uses a lot of to control her grand mal seizures. In no uncertain terms Charlotte’s life depends on this plant. Charlotte was diagnosed when she was 3-months-old with a very, very rare and violent form of epilepsy known as Dravet Syndrome. Charlotte will experience a very high number of what we call tonic-clonic grand mal seizures – about one every 20 to 25 minutes. These seizures will last anywhere from 15 to 25 minutes. In essence Charlotte’s life is spent in seizure in a catatonic state. Twice Charlotte’s mother, Paige, has had to bring her back to life using CPR. At any given time Charlotte will be on 7 daily different seizure medications – none of which control her seizures. When Charlotte was 5-years-old her seizures had reached their worst. Her medical team told the Figgy family things like, “Start making preparations for her death. She’s probably not going to wake up from this.” The Figgy’s reluctant signed a “Do not resuscitate” order for Charlotte around this time and she was sent home with a fitted chair, a feeding tube in her belly and she had lost all of her life skills. The family was saying their “good byes.” Think about it for a minute...We’re going to give a 5-year-old cannabis?! Quickly we began to extract and formulate in ratio a non-psychoactive, lab-tested pediatric tincture for Charlotte. I’m happy to tell you that within the first administration Charlotte went from having a seizure every 20 to 25 minutes (that’s 400 per week, guys) down to 0 to 1 per week. Epilepsy Foundation of AlabamaProject Epilepsy Strength Epilepsy Foundation of Georgia Epilepsy Foundation Texas Epilepsy Foundation Eastern PA Epilepsy Foundation of Northeastern New York Epilepsy Foundation of Virginia Hampton Roads Epilepsy AwarenessThe Epilepsy Helping Hands NetworkMothers Against Epilepsy Epilepsy Foundation Heart of Wisconsin Epilepsy Foundation North/Central Illinois - Rockford, IL Epilepsy Foundation of DelawareYouth in Epilepsy Epilepsy Foundation of Connecticut Epilepsy Action Epilepsy Foundation of North Carolina Epilepsy SupportSouth Carolina Advocates for Epilepsy Epilepsy Services of Southwest Florida Epilepsy Association of Central Florida Epilepsy Resource Center Epilepsy Foundation of FloridaGeorgias Purple Peaches Epilepsy Awareness Program Epilepsy Foundation of Louisiana Epilepsy Foundation - IowaThe Epilepsy Network (TEN) Epilepsy Foundation Southeast TennesseeFlorida Epilepsy Services Epilepsy Foundation of MississippiNeurology and Epilepsy Center of Central Florida Epilepsy Awareness For Southwest Florida Epilepsy Foundation Middle & West Tennessee Epilepsy Foundation of East Tennessee Epilepsy Support Group Epilepsy Society Epilepsy Awareness of Alaska Epilepsy N.J. Epilepsy Foundation of Long IslandThe Epilepsy Foundation of IndianaHope 4 Children With EpilepsyHope 4 Children with Epilepsy NCWeill Cornell Epilepsy Center Epilepsy Foundation of AmericaAlabama Pediatric Cannabis Advocates Pediatric nursing Pediatric Nursing Pediatric NursingUAB Student Nurses AssociationAlabama Association of Nursing StudentsUAB School of NursingGraduate Nursing at The University of AlabamaEmory University Nell Hodgson Woodruff School of NursingCapstone College of NursingUAB Hospital NursingUAB School of Nursing Honors in Nursing Program https://youtube/watch?v=ciQ4ErmhO7g
Posted on: Thu, 26 Jun 2014 00:01:59 +0000
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