Gids decided to do the IVIG again, which gave him severe side effects three months ago. Well deal with it, Mama. Man, I love this boys heart. Now were waiting for insurance approval. Hoops to jump through and whatnot. It looks like it wont be tomorrow, hopefully we can get it in by the beginning of next week. Itll take at least 8 hours when we do it and, if like last time, will leave him throwing up, hurting intensely everywhere, and with a debilitating headache, among other things. The nurses at the chemo lab call the IVIG nasty. He says if it might help him get better hell do it and do it sooner rather than wait til next months treatments. Hes hurting pretty badly this time, but was able to sleep by about ten. Were grateful for that. And Im grateful for the other boys hearts and how theyre rising to the occasion. Ikes of course doing whatever he can to help Gid and me. Opening doors, getting drinks, retrieving forgotten items - you name it, hell do it. By now I expect this from his big heart. But tonight when I needed to hold Gid while he was hurting, and Ike was busy helping elsewhere, Phineas - without being asked - took Niam, laid down with him, and read to him til he was settled. These boys have amazing hearts and Im so grateful to see the character and faith developing in them as they choose to persevere through the suffering. I hate this path, would never have chosen it, but I love the beauty I see in these ashes.
Posted on: Fri, 06 Jun 2014 05:08:28 +0000
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