Good afternoon #AydainsArmy! After one of the most difficult weeks we have spent inpatient Aydain is home and resting comfortably. Besides the most nerve wracking scans we have had in some time scheduled for tomorrow morning we have very little to report from round #3 of immunotherapy. We have however finally opened the door to a few major concerns with Aydains long term care not regarding Neuroblastoma we have and are now finally able to address thanks in part to one of our very patient and understanding nurses (Thank you Sarah!) Our poor little boy was inconsolable throughout the entire week, angry, saddened and confused. Aydains nurses, David and myself had to be on extra high alert, fearful he would manage to rip out his G-tube or his central line which is connected directly into his heart. The photo of Aydain and his brother Landon below(look at all of that hair) is the very first time he smiled all week, during our inpatient stay he just repeated and cried over and over for his brothers. We are scheduled to be at the hospital bright and early for a bone marrow biopsy that we pray to God will show significant decrease in the disease running through Aydains tiny body. We will udate with any and all information we are given as it is handed to us. Thank you all for the love and light you so selflessly send our way, the fight in our little man is growing stronger with your help! ♡
Posted on: Sun, 09 Nov 2014 21:47:35 +0000
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