Having to hold my sweet baby boy after one of Lenas seizure - TopicsExpress

Having to hold my sweet baby boy after one of Lenas seizure watches as he cries his eyes out is heartbreaking! There are no words to describe the helpless feeling I have as a mother. Hearing him ask me what would we do if Lena dies mommy? Just cuts me deep. This isnt something a child should know about. These arent questions that should cross the mind of a newly 8 year old. Its after midnight and officially his birthday. He should be happy and asking about parties and gifts, not crying and praying God doesnt call his baby sister home. I HATE THIS! I would give anything to take this away from them. For them to finally have the childhood they deserve. Free from seizures and sickness. Without pain, worry, and heartbreak. Happy birthday sweet baby boy! I hope the rest of the day is better than the start. Im So sorry things are this way and would give my life to change them for you. Im just broken.

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