I cant believe this beautiful little girl will be a year old soon!! As exciting as that is, its also scarey for me. When we have kids we think of their futures, we know they will have struggles throughout their life although we usually dont know what they will be... with Taylor its a blessing and a curse. Im happy we know that she has prader-willi syndrome so that we can learn to manage it right away. Im saddened to think that as she gets older that she will have such a hard struggle with food. She has done so well developmentally, and come so far that its easy for others to forget, but for me its always in the back of my mind ... weighing on my heart. Praying for a cure for pws! ow.ly/i/65WUc
Posted on: Wed, 02 Jul 2014 21:00:46 +0000
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