I dont like making everything about my nasty and unusual disease. - TopicsExpress



          

I dont like making everything about my nasty and unusual disease. I am not even comfortable discussing the condition publicly, but this being awareness month I will break with my comfort for the sake of the greater good, awareness, treatments, and dare to hope for a cure. So each day a little snippet of what this life has become. 2. As with all days the second or two after waking I feel just fine. Then it starts. To fully wake-up requires taking a stimulant, it has for as long as I have been taking sleeping pills. Even though those are long worn off - half life four hours - once asleep I zombie until a stimulant shakes the sleep out and the fog lifts. What is also odd is that in eight years you might expect to adjust and need a higher dose, but with my brain there is no getting used to anything, not even that. To begin with the dosages are very small, I have become very sensitive to even minor medication changes.On nightsI dont take sleeping pills no sleep happens, which is how I deal with early morning appointments since waking fully before eleven or so just does not happen. At least it took care of the blackouts, missing time,crying jags increased pain, that came with sleep deprivation
Posted on: Tue, 04 Mar 2014 11:02:13 +0000

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