I just turned 20 years old last night. Im afraid it might be the last birthday I have. I was diagnosed as an infant with Cystic Fibrosis, and I have currently been admitted for courses of IV antibiotics 26 times. I wasnt always the best at doing EVERYTHING I was supposed to do, but lately Ive been so much worse than I was when I was not much younger. When I was in elementary school I would get admitted about every 6 months or so. Middle school I started getting admitted every 3-5 months. High school about every 3 months. I graduated 2 years ago and dont attend college, I moved out and got my own place, then moved in with a friend. Now I live back at home waiting on a new apartment. I have been getting admitted almost every month now, but put it off as long as possible. I must say, with age I have gotten so much worse in my respiratory health and Im to the point I can almost do nothing that involves being physically active.. I run out of breathe so easily and get winded from the smallest amount of effort. I cant sleep without being elevated at an angle and cant lay on my back much at all because my lungs wont work right and I start coughing a lot. I toss and turn and when I first wake up in the mornings and sit up, my lungs have to adjust and it is the worst. My chest feels extremely tight and heavy, and it makes me cough for a long time and I almost instantly have to use an albuterol nebulizer. This shit sucks so much I but I dont know if I could get a lung transplant in time, Im not even on a list yet. Or if I even want one.. I dont like the statistics on them. Fml.
Posted on: Sat, 18 Oct 2014 16:36:58 +0000
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