Im 25 years old and was diagnosed with x mutated alports very young, I take all my necessary steps to stay as healthy as possible and Im doing well, however I recently had a son whose now 2 years old he has been peeing blood every so often for the past 9 months we have exhausted all of our options and tests and finally now have an appt with a nephrologist within the next week to test him for AS I am scared and saddened by all the stories I have read, I dont know anyone else with AS and my husband and his family do not know much about it , I feel alone in all my horror knowing what having this horrible syndrome will do to my baby boy.anyone with a similar story willing to offer some advise I would greatly appreciate it! Also any info on charity runs for AS or anything I can get involved in as we start this journey with my son will also be appreciated! Thanks out of lake city florida
Posted on: Sat, 16 Aug 2014 03:37:33 +0000
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