Im posting this for the sole purpose of awareness. MELORHEOSTOSIS is real. Its an in curable bone disease that becomes debilitating. Its very painful. Along with Griffin ONeal, and many other friends I have met through the Melo association website, I am also afflicted with this horribly painful disease in my left tibia bone. Some days are excruciating. I pray a lot about this. And for all of the friends who have been judged or their disease has been discounted because they appear healthy otherwise. I thank god everyday that I still have my leg. I can still get out of bed. I can still walk, no matter how painful it is. Im grateful for those who have supported myself & all of the wonderful people I have met who (unfortunately)share in the same disease.
Posted on: Fri, 04 Apr 2014 16:40:24 +0000
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