It is amazing how much can happen in 24 hours. I should have learned this the night I learned about Jakes brain tumor and many times there after. Joe and I just keep learning throughout this journey. Sometimes though we want to stop learning and just enjoy being in the moment. Yesterday I wrote about how Jake got a headache and then proceeded to vomit in the evening. Unfortunately, he vomited every 20-30 minutes until about 2:30 am when he thankfully fell asleep and stayed asleep. If he was to vomit one more time we were driving to Hopkins. I laid there awake watching him and praying that he would wake without a headache and his stomach settled so that he could have a restful day. Well, God had other plans for Jake today. Thankfully, Jake was able to sleep until about 8:30, but woke with a level 10 migraine. He was in such pain. He didnt want to move. We got his migraine cocktail ready and gave it to him and guess what happened? Yep! It came right back up. As it did he just cried because he was in such pain. The poor kid had not been able to keep anything down since 6:30 the evening before so we knew he was dehydrated which was not going to help his migraine. This was just going to be a vicious cycle for him. We got him back into bed while Joe and I got ready and we left for Hopkins. At Hopkins they first treated him for the migraine because that was what was bothering him the most. Within a short amount of time his level was going down. It was so nice to see. Once they finished the meds for his migraine they gave him some anti nausea medication. The oncologist talked to the ER doctor and feels that what happened was NOT a result of the chemo. He thinks it was due to the radiation. Due to the location of his tumor it is located right next to the areas that control nausea and migraines. Great, right? Both of which Jake had issues with after just one radiation treatment. He thinks that the radiation caused swelling and is bothering those areas. This combined with coming down off of his steroids is what is causing the issue. They decided to put Jake on a different steroid that is more specifically designed to help with brain swelling and at a higher dose than what he was on now. This made Joe and I feel better because maybe this will help him get through some of his radiation treatments comfortably if this is any indication of what treatment will be like without steroids. We are to resume his regular chemo pill administration tonight as usual even though we missed last nights dose. We will hope he doesnt have many more nights like that. While at the hospital we kept hearing about the weather and became increasingly concerned about how we were going to get Jake to radiation tomorrow afternoon if the weather became bad. We decided to stay downtown in a hotel in the event the weather was bad in Westminster, at least we could make it to radiation. This way also if Jake gets sick again we will be close and not have to drive far in the snow. We will have to wait to see what happens with Tuesday. If needed we will stay another night to keep us safe and to ensure that Jake makes it to his treatment. Thank you to all of you who have kept Jake in your thoughts and prayers as he begins his treatment. Unfortunately, it looks like it may be a long road for him. I pray that this is just another bump that needed to be ironed out and that things will be smother now, but history has shown things dont come easy for Jake.
Posted on: Mon, 26 Jan 2015 02:58:25 +0000
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