June: “None of us, including me, ever do great things. But we can do small things, with great love, and together we can do something wonderful.” Mother Teresa The Empire State building refused to go gold back in 2010 to mark the 100th anniversary of the birth of Mother Teresa , with all the controversy over this year’s Empire Go Gold campaign I had to also quote this amazing woman. As we spread gold this month for Pediatric Cancer, Mother Teresa is correct, no one is too small or can do too little, for you do this out of the love for the child that is battling, the one you birthed, or know through friends, or saw their picture of, heard their story, or for the one that will be next. Out of that love, nothing is too small because together we can do something wonderful – better treatments and ultimately a cure. I have been overwhelmed with opening Facebook and seeing my news feed filled with pictures of Grant as profile pictures, my child, all these people care about my child. I wish I could explain the heartache and yet joy that this brings. Today James had his first day of preschool for the year and Grant should have been there too. Grant was registered but cancer changed everything, and instead of being there to take that first day of preschool picture with his big brother, I had to rely on someone else to take James while I took Grant to start another round of chemo. It isn’t fair. Instead of discussing where your backpack goes I am discussing the mucositis that the “Red Devil” drug will cause him and what to look for when he stops wanting to eat and drink from the sores that will develop at any point along his GI track. I wanted to be the one picking up preschool and seeing the smiles. And that doesn’t count the two little girls to greet, or the husband as he comes home from a day of work also. The point of this is, do something, because it can happen in a moment and you could be the one typing about this too instead of just reading it. Grant had a good day though, all things aside, he is a trooper beyond trooper, a chemo taking trooper. He was pretty agitated all morning at clinic, not even Chick-Fil-A could cheer him up – until we got word our room was ready and we were greeted by a favorite nurse, Jennifer, to wheel us to Hotel AFLAC. We got to the room and a Spidey balloon and a Spidey lego toy were on his bed and Grant lit up! Thank you Jennifer! He ate all his dinner and it stayed down until bed time, but right when his meds were due he got sick so if we stay on top of the meds hopefully we will stay on top of the nausea. The sores in the GI track will take about a week to form, they could be mouth sores or throat sores or intestinal sores so we will wait and see and pray. We also heard word that Grant will be scanned again sometime during the 3 weeks of this round. Scans, the waiting and the trusting; waiting for them, during them, and then for the results. All we can do is continue to trust the Lord that He does have a plan for this that involves using this for good, because we believe in a God that wastes nothing, but uses all for His glory. Pray continued hope for us, do something so that our family and all those afflicted by this disease can continue to hope. Pray for the side effects of this chemo to be minimal; pray for our hearts as parents as we continue to wrestle with being there for all of our children; praise Him for the amazing “village” of people that love on our children while we are not there; praise for the way Grant continuously fights this disease with a smile and his very determined Spidey will!! We know we have been challenged by Steven Terrell and Jessica Boozer to take some pies in the face, and we will, as soon as Grant is home from this chemo. We ask for an extension please! I also want to thank Times Square for going gold last night! WOOHOO! One step at a time, one prayer at a time! #graceforgrant #GoGold
Posted on: Wed, 03 Sep 2014 13:51:05 +0000
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