Just called ENT about Xiomaras increase in stridor especially while sleeping. The oxygen isnt even helping. its LITERALLY doing nothing even on 1 liter. I told the nurse i was afraid to keep her on it if it isnt helping because of damage to her lungs and she said i was 100% correct and to only use it at night as minimally as possible at just 1/2 to avoid anymore damage to her otherwise healthy lungs. Have to now keep her on the apnea monitor throughout the night again. Her sats havent gone down and her heartrate hasnt increased but she is doing alot of retracting. They have to get her Plastics, ENT, Pulmonology, GI and Cardiology drs together to talk about her case. I sent them videos of her sleeping and ENT is concerned. please pray for my princess. We have surgery on Sept 11 for her eyes. Praying to God she wont need another surgery on top of that before the end of the year.
Posted on: Tue, 29 Jul 2014 19:57:04 +0000
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