Just received this inbox. Hlhs parents this will give you lots of hope This survivor’s story starts in April of 1991. My nephew as born and thought all was well till he went for his 2 week check up and was rushed to Blair E. Batson Hospital. He turned blue and was having trouble breathing in the doctor’s office. What we found out was that he was born with 4 congenital heart defects. 1. Transposition of the great arteries - (TGA) is a heart condition that is present at birth, and often is called a congenital heart defect. TGA occurs when the two main arteries going out of the heart—the pulmonary artery and the aorta—are switched in position, or “transposed”. 2. Dextrocardia - is a condition in which the heart is pointed toward the right side of the chest. Normally, the heart points to the left. The condition is present at birth (congenital). 3. Single ventricle - is a general, non-specific term used to describe several congenital heart defects that differ from each other, but that share the same problem: The heart has only one adequate-sized functional pumping chamber (ventricle). Single ventricle defects are congenital (present at birth). They are among the most complex congenital heart problems. They affect five out of 100,000 live births. They virtually always require one or more surgeries. 4. Proliferation of the capillaries in the lungs - Pulmonary capillary hemangiomatosis (PCH) is a rare pulmonary disease characterized by numerous capillary-sized blood vessels that proliferate diffusely throughout the pulmonary interstitial tissue, pulmonary blood vessels, and airways He was initially treated at Blair E. Batson Childrens Hospital and also at Boston Childrens Hospital Procedures that he has had are 1. BT shunt - are used for defects that affect the flow of blood from the right ventricle, through the pulmonary artery, and to the lungs. 2. Modified Fontan 3. Complete Fontan - A Fontan procedure is an operation done for children who have abnormal hearts and cannot have their hearts repaired with two pumping chambers (ventricles). The operation connects the veins bringing back the blood from the body directly into the lung arteries. After the Fontan operation, the heart is used as a single ventricle that ejects the blood with oxygen in the body. The blue blood without oxygen coming back from the body does not go back to the heart to be ejected into the lungs as normal. It is flowing passively, directly into the lungs, without being pushed by the heart My nephew is now 23 years old, he obtained his Associates Degree from Le Cordon Bleu Culinary Institute in Dallas,Tx and works for a local restaurant. He lives on his own takes his medications and is leading a full life. The only issues he has had as of the last year has been complications with the proliferation of the capillaries in the lungs.
Posted on: Mon, 05 Jan 2015 02:16:21 +0000
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