Katy Klement, age 9 lives in the upstate of South Carolina. In November 2009 she had her first seizure at age 5. She had a second seizure in January 2010. Nemours Childrens Hospital in Jacksonville, Florida preformed an MRI, and there was nothing abnormal found. She was placed on a seizure medicine called Kepra. after over a year of no seizures she was weened off of the medication. In 2013, we thought Katy was showing clear symptoms of ADHD, as well as memory issues, and her being very emotional, so decided to take her to be tested. After discussing her previous seizures, they wanted her to be seen be a neurologist, to rule out the possibility of Petit Mal seizures. Her neurologist in Greenville, South Carolina preformed an MRI in September 2013. He compared the MRI to the one she had in 2010. She was diagnosed her with Hippocampus Sclerosis on her left temporal lobe. The location of the scar tissue, effects her memory and emotions, and is also the location where the seizures are coming from. After being diagnosed, her neurologist, wanted to do a 24-hour EEG. While in the hospital for 24, there was no seizure activity. We then did a 2 day EEG, with nothing abnormal found again. Her neurologist then asked to do a 4-day EEG. This time it was abnormal, and there was seizure activity. The seizures mimic staring spells, and can last from 5-70 seconds. The seizures that she had in the hospital, we were able to re-watch them on the video records done in the room. She was just staring, and smacked her lips silently one time, and twitched her left hand the another time. If she wouldnt have been on the EEG, we would not have known. She was started on seizure medicine again, Trileptal. In September 2014, her team of doctors, wanted to do another MRI, one year from the date of the last one, to see if the scar tissue had stayed the same, or gotten bigger. The results came back, that it had slightly gotten bigger, and he was very concerned, about the seizure activity, and her memory. Her short term memory does not retain information very well. Her doctor explained having scar tissue, or any mass on your left temporal lobe, mimics dementia, or Alzheimers. She struggles in school with all subjects, and has a very hard time retaining anything, unless she is repeatedly doing it daily. Seldomly she will misspell her name on papers. With all of the information her neurologist had, he wanted to send her to The Cleveland Clinic, in Cleveland, Ohio. He told us it was the best in the country, and if we didnt mind traveling, he would like for her to be see there. In November 2014, She was admitted to the Cleveland Clinic, for 5 days. They did a neuro-psych exam, had a 5 day EEG (half on seizure medicine, and half on no medicine), and a consult with the doctor to go over all of her many MRIs and EEGs. They also preformed a PET scan, to get a clear picture, and to also look at the right side of her brain. They noted that she did have very very minimal scar tissue also on the right side, but said that is always very common in patients that have it on the left. This appointment was to determine if she was a candidate for surgery, to remove the scar tissue. November 25, 2014, they called to let us know, She will be having the surgery in December around Christmas. This is considered brain surgery, they will go in, and remove the scar tissue. We have to travel to Cleveland, and will be bringing our three other children, to all be together for the holidays. We do not know the exact date yet, but they said it will definitely be around Christmas. She will have to be there a few days prior to have a pre-appointment with the Neurosurgeon, then surgery. After she is released she will be out of school 6-7 weeks.
Posted on: Tue, 25 Nov 2014 22:04:01 +0000
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