Okay! So Im a little perplexed with my sons HTC. When my son was first diagnosed right after birth (heel stick) the first thing I wanted to find out was, where did it come from!? So my general doctor ordered a factor 8 activity level blood test to see my levels as instructed by my sons HTC. The results came back 31%. When I told my sons HTC they said well that would indicate your a carrier. Not a 100% sure but 99%. Then in the last few months I read on a post or article or something that said that factor 8 levels could change because of hormones like breastfeeding. Well when I had the blood tested I was breastfeeding like every 4 hours. My mom then had her levels tested to see if she showed normal levels and she was above 50%, so they said well it just came from you. Now, 2 years later, this article has me questioning myself. Am I really a carrier? Being a carrier has really changed my husbands mind 360 degrees about having more children. He really hates the idea of inviting a child into the world on purpose with such issues. Im fine either way - hemo or not- I just want more children. So I sent in a request for genetic testing to my sons HTC no one called me. I called. No call back. Holidays came around and now that I think about it again I called today and they were like oh ya no problem we can do it for FREE!! Im like what the heck then why dont you offer that as soon as he was born so that way I havent gone two years blaming myself and just now realizing it might of just been a genetic mutation. It takes 2-3 months to get the results back. So, while Im awaiting our appointment to get those labs drawn.. I want to know, how did you find out you were a carrier (if you are) and whats your levels?
Posted on: Wed, 31 Dec 2014 19:55:00 +0000
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