Okay tears watching that NF is such a horrible disease !! not may people even know of it and the devastating effects that NF causes !!1 The daily battles these amazing and brave kids go through !! Things from tumours , constant pain, epilepsy major headaches this list goes on !! My son is an Neurofibromatosis warrior !!! does he let it get in his way no he fights it with so much energy yes we have bad days but we have amazing days to like when Marc conquers a fear and one of his major problems is trying new foods the days his feeding tube was removed we had tears of joy but it was amazing to say goodbye to tubey...the nick name for his gastrostomy !!! So can i please ask you all to share the hell out of this video !! As when this reaches 1000 share Marc, myself Donna Cameron Gillian Ross Greig and a few other friends will be putting on our walking boots and climbing a wee hill in Marcs words. We will be climbing a mountain in the summer the money will be split between 2 amazing and deserving charities !! They are Funny Lumps Support Group they support families of children with Neurofibromatosis and The Archie Foundation Raigmore Childrens Ward Appeal as they support the sick children in the Highlands making that horrible hospital stays a little more bearable !!! so please please share !!! we need 180 more share !!! xxx
Posted on: Sat, 15 Nov 2014 18:37:25 +0000
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