So despite the crappy day we had with rude people, James xrays looks great. Bones are growing and slowly improving. We have a long way to go but seeing as we started from nothing weve came so far! His bones are wider. They are longer but not as long as we would like to see. Also still very weak. But still greatly improved from three months ago. We need to continue to push James to use his muscles and bones as much as what is safe for him. Going to try to start getting him vertical in a jumper to promote vertical growth of his bones. The improvement is amazing. Good things are happening for James :)) The biggest yae moment was when they said his skull looks and feels very normal for a child his age! This is an amazing thing! Weve been so worried about his skull and what would happen if it didnt form properly. Praise God and lets keep the good things coming! His ultrasound of his kidneys was normal! And the drug company is moving closer to getting this med FDA approved. Which means easier access for us. Thanks for the prayers and continued support yall!
Posted on: Fri, 01 Aug 2014 02:42:18 +0000
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