So far so good the new letter to the bully quacks:- Thank you very much for your email and I am somewhat surprised that you don’t feel any request made under the Freedom of Information Act 2000 should be responded with a written reply, as I thought, once one has to take that sort of action to obtain simple information from ones medical records, that any response should be done in writing! I certainly very much would like this information on writing as I’ve lost all ability to trust the medical world and, as explained in my previous emails, that I am not able to trust anything you say to me anymore unless you give it to me in writing and certainly, in my opinion, if you cannot answer the questions in writing because you cannot not tell me the truth without admitting wilful negligence, then what suggests that you would tell the truth in a consultation, when I know you can treat me with as much contempt as you wish and even shout at me, should I get upset because you are not being honest or sympathetic . Furthermore, I do not need anyone to give me an understanding of where we are currently with my hepatitis C virus as that is the only thing that has been made more than just apparent to me, which is that there is no treatment available for me, a decision based on lies and deceptions because you claim I have a intolerance towards peg interferon and ribaviron even though any other patient administered with an overdose of these sort of aggressive medication, would naturally develop intolerance as the human body tends to react intolerant to any overdose not just chemo therapy. As for the clinical trial, because that was the final trial of this very promising new treatment I will have to wait until it is licensed and available on the NHS and that can take at least another 1-2 years but that only if it is licensed, if not I have to wait until new medication is fully available on the NHS and the meantime my life is on hold. Needless to add I am extremely disappointed that I was not allowed on that clinical trial and shocked that I was put under immense stress trying to find out about this clinical trial and the liver biopsy you requested that you clearly don’t need anymore, and I had to figure out that I was removed from the medical trial all on my own because no one had the heart to talk to me about it, and none of you seems to see how utterly cruel that was considering also the issues with my asthma from the medication for my high blood pressure. Now we have a situation where the little trust I was willing to give to medical professionals, despite this cover up of that overdose, is broken as well and as much I would like to have medical care I am not able to give consent to any medical procedure or even consultation, as I fear that the situation will just be brushed under the carpet and the lies continue to be perpetuated for the sake of protecting Ms Narbey because clearly she is so much more important than my life, even though she is responsible for great suffering on my part and has ruined my life. With this in mind I will put it to you again, unless you can reassure me in writing that there will be an investigation into this chemo therapy overdose event and the issues with the medication for my blood pressure, as well as answers the questions asked under the Freedom of Information Act 2000 in writing, I am not able to give consent to a consultation or medical procedures. These are extremely serious issues as far as I am concerned and you should not want to brush any of it under the carpet, possibly using my mental health issues, that you refuse to offer treatment for, as an excuse, when you have undisputable evidence of the fact that the chemo therapy was an overdose and the blood pressure medication issue is recorded in my medical records. Don’t forget at the Queen Elizabeth hospital in Woolwich, they take cardboard boxes covered in black sheets extremely serious, which begs the question why not take a chemo therapy overdose serious?! Or are you going to tell me again that it doesn’t matter that I had suffered an overdose form that chemo therapy because I would have had a that reaction anyway, as for me that is about as unscientific of a statement as it gets and alas we will never know if I would have had the same reaction without an overdose, because you would not allow me to have that particular treatment, which is the only treatment available until new treatment is licensed and available on the NHS and I certainly could not trust anyone with any treatment anymore when I can’t even trust the promise of treatment. What gives you the authority to give hope that means everything to patients life only to cruelly shatter that hope the way you have done by refusing any information in relation to it until it dawned on me it was just a hoax if Mr Dugalas information can be trusted? Why do you think it’s acceptable that a patient is absolutely terrified of you because they know you can poison them and then bully them for 5 years or longer if they don’t stop asking question or object to the fact that treatment plans are based on lies and deceptions? Are you willing with any possible future care plans to allow for the fact that it was an overdose or is it expected of me to carry on and take responsibility in terms that it was something about me, such as my mental health perhaps that had cause the treatment to fail, and keep all the lies and deception in my medical records for the rest of my life? Anyhow, should you insist that it was mental health issues could you perhaps be so kind to at least let me know what mental health issues I suffer from that I had a serious reaction to a chemo therapy overdose. My next question to you is would you find it acceptable to be treated the way I have been treated keeping in mind that I perhaps do tell the truth? Of course none of you would find it acceptable in the least if that was you and I have no doubt that you would have had a lawyer on the case a long time ago as well as family members around you giving you robust support, something I don’t have nor can I afford a lawyer and I do feel you are taking advantage of my situation. As for pals services participating in a consultation, to be honest, I am at a loss what services they provide and in whose interest they act, as in my experience at the Queen Elizabeth hospital in Woolwich, they don’t offer any support to patients that make a complaint even though they acted as go between in my initial complaint over this overdose besides another patients having made them aware about the extreme abuse I had suffered at the acute psychiatric hospital, that is part of the Queen Elizabeth hospital, yet no one offered any help or support thus I can only surmise that their job is to protect the medical professionals as well as the NHS trust. In any case if I was to attend this appointment and people from the pals service were to attend as well, then I would need to know if these people are a qualified medical professionals or just volunteers from the general public as I would not want anyone from the public with no medical qualification to be part of this problem in a consultation, due to confidentiality issues as well as lack of medical knowledge. However, I cannot stress enough how serious I believe any overdose prescribed or administered by a medical professional is and in my opinion any type of overdose, chemo therapy or not, should be thoroughly investigated and there could not have been an investigation when relevant documents from my medical records, I have provided copies of, have not been analysed and connected because if that had have happened, then Ms Narbey should have been asked to answer some questions instead of telling me that absolutely nothing was wrong with the treatment when these documents show that it clearly was an overdose. To summarise this letter this is what I would like to see in writing before I can give consent to a consultation:- 1) Confirmation that there will be an investigation into the chemo therapy overdose. May I remind you Ms Narbey is NOT entitled to change the dosage of this particular treatment no matter what the reasons are, nor is a prescription valid if it is not signed by the prescribing doctor and to the best of my knowledge that is what makes that deed of Ms Narbey unlawful and a criminal matter rather than an internal issue that can be resolved by the NHS trust. Everything else Ms Narbey claims she did or didn’t do after that is circumstantial surely thus what concerns this it’s totally irrelevant whether I am mentally ill or not! 2) Confirmation of investigation into the issues with that blood pressure medication causing asthma attacks when it’s a known fact that I have asthma and asthma attacks can be fatal. 3) Answers as to why there was a total refusal to communicate with me and my GP about the clinical trial and the liver biopsy and why this liver biopsy is not needed anymore and why no one had told me as soon as that became apparent. Is it normal practice to let patients wait for 7 month or more before informing them of a cancellation of an invasive medical procedure and vital treatment for a deadly virus? May I stress that wilfully refusing to communicate simple yet vital information to me about my medical care is an infringement of my basic human rights therefore a very serious issue as well! 4) Confirmation that Ms Narbey has been instructed to refrain from accessing my medical records or involves herself in any way with any of my treatment in the background. 5) Answers as to why Mr Dugala said there was never any intention to offer me any treatment and that I will not be able to have treatment until my liver is in a critical condition and close to failing. How am I supposed to feel about that in particular as Mr Dugala doesn’t seem to understand why I find it extremely distressing to be told I have to die from this virus as I would never want a liver transplant, not with my experience of the medical world anyhow? Life with the virus has very little quality if any but even that my new GP doesn’t seem to grasp! A failing liver affects everything including brain function but I should not mind not having treatment for this virus that damages the liver but must be made to wait until my liver is in a critical condition? Enough to cause the most robust person to despair and want to just give up when things look that hopeless and uncompassionate with no support whatsoever, and why should that change after all not offering me real support and care has been very cost effective for the NHS that struggles financially and I must be the most hated patient ever to suffer what you have put me through and everyone turns a blind eye if they don’t actively engage in bullying me and now this attempt to trivialise it. I keep waiting for someone to perhaps say that I might have a point and the documents do make it clear it was an overdose and I certainly was not aware that I should not have taken it all nor was my GP as my GP and I were both told the increase in the dosage was designed to give me a better chance. As you must remember, I have forwarded a copy of the letter from Ms Narbey and you can read this in her own writing. Additionally, do I need to point out to you that this treatment is never ever increased during a treatment or why is it that Ms Narbey does not have to answer any questions when her conduct created a situation that opens up a wide range of important questions, after all this is medical care in a hospital not servicing a car in a dodgy garage. Anyhow how could Ms Narbey tell Dr Brown that the dosage was increased to give me a better chance when that is never done with this treatment? Perhaps it would be an idea to have the police present at that consultation you have offered me rather than pals service? On a different note I certainly cannot see how a 5-10 minute consultation could give me all the answers I am seeking particular when I am exposed to excessive stress that can render me incapacitated thus make me very vulnerable to badgering or manipulation and if I get upset I am the culprit again as there is no understanding of my underlying problems or else we would not be at this junction of total breakdown of trust and consequently respect too, as far as I am concerned! People seemed to be so fast in robbing me of all ability to trust and respect the medical professionals and now seem to expect of me to forgive and forget with no answers to the vital issues that I consider extremely serious, no matter how hard you try to trivialise them, as it is in your interest to silence me and make me accept that this is the way people can treat me and there is absolutely nothing that can be done about. In short it sets a very dangerous precedence in what not just I can expect in terms of abuse, but potentially all patients because what stops you from doing the same thing again next time Ms Narbey or another nurse cause an overdose and that patient has very little support and mental health issues yet wants answers. Can you really tell me you only did that to me therefore it could never happen again and that’s why there is no need to investigate that chemo therapy overdose? If that is the case I certainly would very much like to know why I have been singled out to suffer an overdose and all the bullying and neglect but of course I have not been classified as an untermensch and singled out for extermination, that would be ridiculous for anyone to even suggest it, thus this is not just about me but about the corrupt ways you apply to us patients when you fight for your dignity and reputation but expect of me to not assert my rights with the truth, why?! It’s more than just apparent that you deem me as a difficult patient and I say I am not difficult at all I am only assertive and you don’t seems to realise that I have every right to assert my rights as that is all I am doing, asserting my rights. Finally let me end this letter with an extract from a previous letter, a health care service that refuses to investigate a chemo therapy overdose or any other overdose, if only to find out how that could have been possible to perhaps prevent it happening in future, is a very dangerous health service in my opinion and not a health service I want to be treated by thats for sure! Give me the liberty to know, to utter, and to argue freely according to conscience, above all liberties! NO JUSTICE NO PEACE!!! Gabriele Kreichgauer [Civil Liberties Defender] “Our lives begin to end the day we become silent about things that matter.” - Dr Martin Luther King, Jr.
Posted on: Wed, 23 Apr 2014 22:15:53 +0000
Trending Topics
Recently Viewed Topics
© 2015