So its Autism Awareness day: Ironically we had a DARS meeting for my High Functioning/Aspergers Syndrome son who is graduating this year. Its the first of many meetings I am going to have in order to transition him out in the real world. This morning I think I saw it through his eyes. Growing up was never something I saw as hard or challenging. I couldnt wait, because it meant having my own money and I would be in control. But to see it through my sons eyes is a different story. To sit and listen to a Social Worker talk about psych evaluations, long term care planning, guardianship is not something one thinks about when their child graduates. Then cue in words like inability to be self sufficient and unrealistic career goals or requires additional one on one assistance, my heart engulfed itself. It wasnt like I didnt know any of this, they told me when he was first diagnosed. They used words like never and realistically. I guess I thought somehow we were gonna be the odds. We have, hes come a long way from being nonverbal, repetitive speech and movement and self harming to happy, outgoing, willing to try new things and helpful. Im still in tears, because all I want to do is be Mama Bear and protect him from the crazy crazy world. I guess its starting to register that there will be things and experiences that he never get to experience like his younger brothers and sisters and I dont know how to explain that to my sweet boy who thinks otherwise. I think I just need to hear something positive right now about all this...
Posted on: Wed, 02 Apr 2014 18:31:14 +0000
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