Something many of you may not know about me is that my father passed away from ALS. This is something that is very difficult for me to talk about so I dont much and all week have struggled with if I should say something or not and I have liked posts and said little tidbits until I saw this. To most when I speak of it I show no emotion as it is too hard to discuss, I avoid the cemetery and have not really dealt with this. That is because of how awful this is. I had to watch my father, the man who was rarely ill go from my dad to a man that was 92lbs and could no longer feed himself, wear diapers, hardly breathe, bones poking through from sitting because he was so thin and hear him say you dont have to feed me because he felt so bad we had to take care of him. All of this while his mind still worked perfect! There was nothing they could do for him other than say they were sorry and you can expect to live 2-5 years. Everyday he had to sit there and get worse and wait. There was no hope, no treatment to help the quality of life or possibly extend it. He passed 3 weeks before my son was born! I would not wish this on anyone and knowing it can run in families is the scariest thing I can imagine, not even for me but my children. Please donate for research, every dollar helps. I would have done anything to even have another month with him.
Posted on: Fri, 22 Aug 2014 00:17:47 +0000
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