Sona is the daughter of very good friends who are trying to do - TopicsExpress

Sona is the daughter of very good friends who are trying to do everything possible for their daughter by bringing awareness to this rare genetic condition. It is believed to be a single random mutation and therefore treatable. Funding has been extremely low as it is so rare yet with modest support progress with FOP is highly likely and will also benefit other genetic treatments. All emotional support at https://facebook/sonasmagicwand and financial support at ifopa.org/ is greatly appreciated! Today, April 23, is Fibrodysplasia Ossificans Progressiva (FOP) Awareness Day. Please bring awareness (posts, tweets, email, etc.,) to FOP and support the beautiful children impacted by this condition.

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