Sorry I havent done an update for awhile. Ive been working with an awesome group of amazing people who have helped me out with babys medical bills. Hes been able to have his blood transfusion and then this week started on epogen injections which for now I give him three times a week to try to keep his red blood count up. He is still receiving the tcyte injections every two weeks right now as well. He has gained a little bit of weight so back up to nine pounds...no issues with not eating...lol. We will do his first set of blood work tomorrow with a quick pcv. Before his blood transfusion his pcv was only eight which is horrible. Hes been crazier than ever. Playing with anything and everything and running all over the place. He seems a little pale today for the first time which worries me but hopefully its not bad. Fingers crossed for good numbers tomorrow. I hope this medication works. It may be his only chance.
Posted on: Sat, 16 Aug 2014 03:22:37 +0000
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