Sorry for the delay in update! My little family has been busy! Mostly good busy! Natallie update: Oh boy just looked back and it has been longer than I thought since I have updated! Where do I start! Since her surgery we have been in for labs twice and will be going in again this week. Her medicine levels have been a little off and seizures have been the worse then they have been in a long time. We are not sure if this is medication related or an ear issue. Two weeks ago we spent most of the week in and out of doctors appointments. Natallie was crying so much we knew something was going on, so to the doctors we went. Most of the time I have a pretty good idea of what is going on and can walk into the doctors with a self diagnosis. This was not the case other than I knew something was wrong! We went to Nats pediatrician (who we LOVE) and he did X-rays and labs and referred us to peds surgery and ENT. Surgery said everything looked good. Then we went to ENT and found out that Nat has something going on with her ears again. They put her on ear drops and antibiotics to try to help. While there the Dr stated that he thinks pE tube is plugged and if antibiotics and drops dont help it will most likely lead to another surgery. On Friday we had to call ENT and try to move up our appointment because seizures keep getting worse. Although we found out Nat was having seizures about every 20 min when in Rochester at the end of October, they were short and hard to notice. Right now they are long and hard to NOT notice. Breaks my heart watching these types of seizures where she holds her breath, looks terrified and throws her arms around. Hopefully ENT can squeeze us i tomorrow! Even though we have this battle with seizures we try not to let it hold us back or bring us down! Natallie has been busy and super smiley at times! Big girls had a dance recital last weekend and Nat loved being there! We have also been busy doing some fun craft projects,a trip to the zoo, a trip the butterfly house (One of Nats favorite places) and to the big girls church Christmas program today. I almost forgot we also went to the western mall light show and Nat LOVED it! Not sure if it was the lights or the bouncing on my legs but I tell myself it was the combination of both! If the crying continues into this week you will be able to find Nat and I on the bleachers bouncing away at the western mall from 5:30 to 9:00! Jk or maybe not...... Thank you so much for the continued prayers for my little princess!
Posted on: Mon, 15 Dec 2014 04:46:44 +0000
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