This is my niece Blakelee, she has a rare syndrome called - TopicsExpress

This is my niece Blakelee, she has a rare syndrome called Cornelia De Lange Syndrome (CDLS). My brother and his wife are trying to raise money to get to the 2014 CDLS conference in California. Blakelee would get a one on one consult with a specialist to set up and individual care plan to bring back home to her doctor to help make sure she gets the best care possible, as very few doctors here know about this rare syndrome. Please share and donate if you can, as it could make a big difference in her life! Thanks :)

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