We later discovered the hospital Peter died at had an internal - TopicsExpress

We later discovered the hospital Peter died at had an internal “futility of care” policy. Many, if not all, hospitals have these policies and most of the public is not aware of them. This is a terrifying reality for families like ours. If you have a child with complex medical needs you need to be aware that these things happen. Stay diligent. Dont blindly trust that every doctor you come into contact with will agree with your choices for your child. There are many amazing providers out there, but for all of those there are many more who believe in policies against treating children who are medically futile. Weve encountered those such doctors a few times. If theyd succeeded, Lila would be dead now. The public should be outraged.

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