Well, usually I am joyful and thankful the first week of January, the anniversary date when I was diagnosed with mucormycosis, a very rare bone-eating, flesh-eating infection. I have spent the last 8 years always looking on the positive of everything including surviving and being thankful for everything no matter how small. If I did not return your text , call or email timely within the last week, I apologize as I was fighting a really bad cold/ear infection but this was also going on. Believe me, you would not have wanted me to take your call or respond to your text because on this eighth year anniversary, being a mucor survivor took a turn, temporarily for the worse, but ultimately for the better. A group asked me to focus on all the symptoms, changes (mentally, physically and emotionally) and the effect on family, that I have endured from the beginning of mucormycosis to present to help future mucormycosis patients. At the same time, a “medical TV show”, called because they want to do a segment on my story. To the average person, they would probably not notice a difference with me, except a small scar on my cheek. Only a handful of close friends would be able to tell the difference with me pre-mucormycosis and post-mucormycosis. So whats the problem? For the last week I have had to focus on ALL the negatives that have affected my life post-mucormycosis instead of all the positive aspects of the last 8 years. I participated with the group because I wanted to give insight into what a patient may feel or experience since there are not many of us survivors, not fully realizing as I did so, I was going to relive every horrible moment of that ghastly IV medicine, the numerous surgeries, the smell of death, the emotions, etc. About that medical TV show, well see if they want to report medical facts or sensationalize like Mystery Diagnosis wanted to do a couple of years back. We declined to participate with them! (Why cant I get on a normal show like Ellen or Rachael Ray??!?) In any event, its time to pick myself up and concentrate on the positives again. I AM in a good place and its time to live again in the present after reliving the past all week.
Posted on: Thu, 08 Jan 2015 01:20:40 +0000
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