Well we got the call we didnt want. The hospital culture was positive started growing after 48 hrs which wouldnt have been horrible but the culture the home health nurse took fri morning was positive in less than 24 hrs which means the infection is getting worse instead of better. So after lots of begging and pleading they still want us to bring him to the hospital now so thy can take it out sometime tomorrow. Initially they said it should be outpatient to remove now they are saying we will be in the hospital till at least Wednesday. Its my understanding they will try to put in a Iv. Praying it will work. I dont even know what they will do if it doesnt. Then they plan to put either another broviac or port or mediport?? - something Im not familiar with. They make it sound lots easier to deal with than the broviac but I dont like that I dont know anything about it. I think I knew all along it was just a matter of time before this happened I just hoped it wouldnt. I think the worst part about it is when we get these calls they dont care about how long it takes to get there, what plans u already had, the fact that you have to pack on the drop of a dime, leave two other Kids at home, and the worst Is for unknown amount of time. Its really hard to have no control at all over your or your familys life. Last week was absolutely miserable for both of us. Grayden because he is confined to a bed and a couch. Yes we can go for walks and there is a playroom but there are also lots of nasty germs other kids are there with and we often stay in the room for the most part just to avoid all that. It is just miserable being pregnant and there. The sleeping is horrible and uncomfortable, food is terrible, and thats just the most obvious things that stink about staying there. As you can tell Im less than excited about going. Please pray they can easily get in an Iv, we are not there for long, we have great nurses and drs who know Grady and his needs, they are able to get him to surgery 1st thing in the am so he doesnt have to go all day without eating or drinking, and for him to not have any pain. I also feel really bad that Im so upset about going yet he is physically healthy and we have him with us. I keep telling myself its not that bad and could be so much worse however dont know if its the pregnant hormones or what but I have been in tears for the last two hrs. That just makes everything worse bc now Jason and the kids are worried about me and that just makes me cry even more bc our kids have been through so much and dont need to worry about anything else, especially me! Okay sorry for the pitty party and thank u all for your prayers, Grady and I are headed to Stl. Pray for Gray ❤️
Posted on: Sun, 21 Sep 2014 23:47:14 +0000
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