You know, with all of Jetts medical needs, I kind of kept his epilepsy on the back burner, even let it slide if you will. I think in a way it was denial too. When he was first diagnosed with epilepsy it was right as he was coming off of sedation after his trach surgery last November , and even though the docs told me his seizures were unlikely due to withdrawal, I always was in denial and thought they could be. Especially because we never seen them again, until tonight. Tonight on my late drive home I relived when Jett first had seizures, and relived them from tonight. I wasnt sure he was having them, so I took a video to show others for advise. I didnt comfort him. I just watched. I have huge guilt over this right now. And promise myself next time I will do more to make him feel safe. Now , let me tell you, epilepsy will NEVER be on the back burner. I need to get over my denial. I need to prepare myself and I need to be strong for my baby. Sure his seizures arent serious or long, but they are still scary, and I couldnt even imagine how he feels at the time. Thanks everyone for your support and help. The hospital and our family will work hard ( as always) to get Jett home, but right now he is where he needs to be. Goodnight Irony = November being epilepsy awareness month.
Posted on: Sat, 22 Nov 2014 08:05:48 +0000