Hello everyone its Denise. I just wanted to give an update on - TopicsExpress

Hello everyone its Denise. I just wanted to give an update on Alyssa. She really has not been doing well lately. She is extremely fatigued all the time. She has been sleeping up to 20 hours every day. Her pain has been terrible. She has an appointment with her Palliative care doctor on Wednesday so hopefully he will adjust her meds to get her more comfortable. She also has an appointment with her surgeon on Tuesday to get her feeding tube changed. Its going to be a busy week ahead which will wear her out even more . Taffy is still hanging in there. He is just laying in Alyssas arms all the time now. This is so very sad. He has not left her side for eleven years except when she is in the hospital. Please continue to pray for comfort for Alyssa and Taffy. We hope you all get to enjoy your Sunday with your families. Denise

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