Hi beautiful people, time for an Im still here update! I have been in bed for several days (and with the coldest, wetest Hills winter I can remember for many years theres no incentive to get out really!), Im not sure how many of my ailments are due to side effects from the chemo or are mostly coincidence. I began with heightened m.s symptoms- the very severe headaches , exhaustion etc. which tend to worsen when my bodys under stress in some way. Then worsened nausea but then nausea and sometime vomiting have been my friends since radiation a few months ago. Then the chest pain Id been having for some time worsened, not cardiac pain, but pain in the chest tumour area and a worsening of the spinal pain from the vertebrae which have never properly healed from their breakages as well as abdominal pain. Oh and I nearly forgot! One of the worst symptoms has been much worse arthritic pain. I have rheumatoid arthritis which means that if it gets bad enough, the joint pains comes with a fever, exhaution; flu type symptoms really. And the combo of those have been the longest running illness at the moment, but theyre all known side effects of kadcyla. So who knows. As the weathers been so cold Im going to put all of those symptoms down to the arthritis and not the kadcyla. This is where knowing whats what with me is difficult and its usually me rather than doctors who can figure it out. And I will! I have no idea if most or none of these were brought on by the chemo and either way it doesnt matter, I know whatever are side effects will diminish over time and that the drug is essential to me, no matter what side effects it brings. I feel a lot better today which is great 😊 I say all this not to ask for pity, just to both keep you updated and to say I know you all understand when Im not around as much, either on here or in person. I had just been thinking that next time Ill have to ensure that people know Ill be taking at least a weeks rest break after each 3 weekly chemo treatment. And a friend sent a text straight after that and said you must allow rest to be part of your treatment, you have to allow time to recover from it and not feel guilty if youre not all things to all people. Isnt it funny how people can hit so closely to what youre thinking in your own mind without seeing you or talking to you? It always amazes me when that happens! And so Ill be sure to just put resting, and the kids, above all other things. But Ill certainly still keep you all updated and maybe Ill be fine next time and even have a social life! Lots of love to you all. I hope your lives are going well xxx
Posted on: Wed, 09 Jul 2014 06:08:52 +0000
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