Hi everyone im Ryders dad lol im sure you know i had put up an update on here but no one can view it so im trying again. We had a referrel to sick kids in toronto with an amazing doctor that just deals with airway reconstruction when he scoped him he had recorded it and after he played it back to us n showed us just how bad our son is. His last two surgurys did nothing. His larnyx is not working properly n his eppiglotus isnt even moveing and he still has really bad acid reflux. So now we are back at the start with more problems on top of what we had already, no good! Melissa and i feel so helpless, we keep doing circles. So our new doctor has said we will need to do two more surgurys atleast, one to flip his stomach around his asuffagus n another on his larynx i pray everyday for my son to be normal :-( and sad part is, is my lil boy thinks he is. He has no clue because thats the way he has been since day one doesnt know no difference. This has bern onr long year n now we are back at the start but now with 18-20 specailest i lose track thank you to everyone that made our christmas awesome big hugs to all
Posted on: Sat, 01 Feb 2014 16:59:55 +0000
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