I had it in my head that I was ready to fight.....I was ready to get answers and protest Saras Dec. 6 discharge date from the Stan Cassidy Centre. However, Friday did NOT go as I had it planned out in my head........... Mom and I met with Saras Occupational Therapist first. She explained that Sara seems to enjoy this particular therapy. She also let us know that Sara needs a LOT of cuing in order to do things. It seems she needs both verbal and visual cuing in order to understand what is asked of her. We met with Saras Speech Therapist next. I was very disappointed with this meeting. She did say that Sara was making slow, but good progress. She went through some of the activities they work on, but told us that she has been unable to accurately assess Sara because she cant communicate with her! I asked the therapist if there were OTHER methods to assess her or to communicate with her.....pointed out that they are the experts and they should be able to come up with a plan B in order to help Sara. I didnt get the answer I wanted. Physio Therapy was next. Not much to say here.....Saras bones are healed for the most part. She experiences pain if too much impact activities are performed......understandable. One of Saras passions was running. Looks like she wont be able to do that because she broke her hip joint (or something like that!), but said low impact activities would be better for her. Good thing she loves swimming :) Recreational Therapy was also short and sweet. Not much was taken from that meeting since she hasnt really participated with many activities yet. Sara is the type of person who likes to be alone with a book......not playing bingo. We were then meeting with the Neuro Psychologist. This was the one that devastated us. Again, we were told proper assessments couldnt be done due to communication deficiencies. And again, I asked WHY they werent trying a different approach with Sara?! I pointed out that she wasnt the first person who was unable to speak, write, read, and understand spoken words.....that there HAS to be another way. No. Sara has no insight yet as to what has happened to her or the amount of damage done. She needs to understand exactly what happened.....and until she does, she wont move forward. We were told chances for cognitive recovery were low. That pretty much covers all the areas that mean the WORLD to my sister! Thats the most important area of recovery that we needed to know was going to get better for Sara. That covers so many things.....We were just devastated to hear this. It was a very painful meeting. We met with the Social Worker after that. It was just a meeting to help us understand that theres support available for such a situation.....For mom to care for Sara at home and to get her to her outpatient therapies. So, in a nutshell, my sister is being discharged in a week or two and definitely by December 20, when they shut down the centre for Christmas Holidays. Mom & I are left to get the house ready for her arrival. Mom has several meetings this coming week with the different therapists to help her get things prepared and to offer further assistance with the transition. On a different note.......Sara was given a weekend pass this weekend and we brought her home on Friday afternoon :) As soon as she was in the house, she started arguing & yelling at mom and then at me. Her speech was completely unclear.....we didnt know what she was saying. She was SO upset....about something :( This went on for a good hour or more. Then she and mom went to the grocery store for some snacks. Sara was much better after that :) She had a very bad headache and went to bed around 8. Saturday morning seemed like a good start :) I had to go to work, so I only saw Sara for a short time. I got a text from mom in the afternoon that Sara was upset again and wanted to go back to Stan Cassidy, so mom took her back. After work, I went up to see Sara. She was feeling bad....BAD headache again and she felt bad for the way she behaved. I tried to explain some things to her.....she seemed to understand. We had a nice, quiet visit, but I didnt stay long.....so she could rest. She got me to call mom and Sara apologized to her for behaving the way she did. She wanted to make sure mom knew she loves her....always. And her speech......pletely clear! I told Sara I would be back to see her today and we would watch it snow :)
Posted on: Sun, 01 Dec 2013 15:13:08 +0000
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